In December 2004 I was officially diagnosed with Multiple Sclerosis (MS). From the day I was diagnosed, I have been committed to treating this debilitating disease without the use of traditional pharmaceuticals. There is no cure for this disease; however, there are many alternative treatments available that help slow its progression as well as offer some pain relief.
I was diagnosed with epilepsy in my mid-teens, and then in my early 30s I was diagnosed with a degenerative disorder that is eating my neck, spine and joints. Because all are autoimmune diseases, it is impossible to know if they are all caused by the same thing or related to each other. In my teens and twenties, I had problems with seizures that led me to go on anti-convulsant medications. The medicines caused me such dreadful side effects that I opted to go off them. I learned to control the seizures with rest and by trying to control my stress level. Unfortunately, stress is hard to avoid. In the spring and summer of 2010, I began having stress induced seizures. These "episodes" would consist of me basically blacking out.
The worst episode occurred while I was driving home from exercising at Curves at 6:30 a.m. I was singing, driving and feeling great after a good workout. The next thing I knew I was sitting behind the wheel of my husband Brett's pickup truck. I didn't know who I was, where I was, how to drive, nothing. It was horrifying! If that is what an Alzheimer’s patient goes through, I pray that I never have that! Eventually I figured out how to get the truck to the side of the road, but I didn't know where to go. Again, I had no idea who I was or where home was — let alone that I had a phone and family to call.
That was when my doctor gave me no option. I was forced to quit working and go on disability. This caused a HUGE drop in our income, and we were forced to once again move to somewhere more affordable. I was also forced to stop driving and had to rely on others to get me to appointments, treatments and out in general. Again, I am blessed as many dear friends and family have stepped up to help. In January of 2013, I was cleared to drive some if I am well rested and feeling good. It is such a reaffirmation that what I am doing is working to control my symptoms.
I have chosen to pursue a holistic approach to healing since being diagnosed with MS rather than take traditional MS medications, which all have serious side effects. I receive acupuncture weekly, massage therapy bi-monthly and chiropractic adjustments occasionally. I follow a very strict MS healing diet, take vegan grade all-natural supplements, get plenty of sleep and try to avoid stress. Most importantly though, I have been going to Germany for "Live Cell Therapy" since September 2005.
My chiropractic visits are covered in part by my health insurance. The acupuncture and massage therapy used to be provided by a local MS nonprofit on a weekly basis. This organization now limits us to a total of 24 treatments per year, leaving us to cover the other 80 treatments out of pocket. The "Live Cell Therapy," however, is not covered by insurance or through any non-profit organization. In order to maintain or slow the progression of MS, this treatment is needed every six months. I also require it bi-annually for help with the joint pain. The doctor gives me extra injections of cartilage into my neck, back, shoulders, elbows, hips and knees. These cells give me not only pain relief but energy and stamina.
My family and friends are committed to helping me continue the "Live Cell Therapy" with a yearly benefit, which helps cover my trip in the Fall. They are now working on assuring my second treatment as well by trying to grow our Lolo Bash in numbers and donations. I am so blessed to have such wonderful, caring, supportive family and friends who want to enable me to continue this therapy.
If you feel led and are able, any and all donations are appreciated and will be used for only my "Live Cell Therapy" and medical expenses.
Please browse this website and enjoy the photos of previous "Lolo Bash" events. If you or someone you know is afflicted with MS, please check out the links offered in my site. If you want to contact me for more information on the diet I follow or my treatments, do not hesitate to contact me at firstname.lastname@example.org.
Thank you and God Bless!
Lori (a/k/a LoLo) Legan